Charlie is 2 and a half years old! We were not supposed to see this day, but here we are! We thought we'd never even hear the words mama or papa. SMA affects ALL of the muscles...the tongue (for speaking) the lungs, the limbs, the esophagus (Charlie's on Zantac for this) and can cause facial paralysis. Also, Charlie's jaw needs to be exercised regularly because she is constantly clenching it closed; she does this to protect herself from accidentally swallowing her secretions which she knows she'll choke on if she does. We never take Charlie's smiles, leg wiggles (dancing) or gentle caresses (the BEST feeling in the world!) for granted. AND, Charlie is SINGING now! She learns new songs within hours and hums the tune perfectly over and over, it's really quite brilliant, and nothing short of amazing.
For this post, I'm putting up some of my favorite pictures and videos of Charlie from the past 6 months.
Smiles at grandmas house.
Cuddles with mama.
On our way to meet Santa.
Still smiling and thumb sucking with her new hand splints.
Dancing with mama.
Cuddles with papa.
My little elf.
Toy Story (thanks Starlight Foundation!) with bf Dani.
Aunty Fatima brought this back from India for Charlie.